I was scrolling through tweets on my phone a few weeks ago when I came across the blog setup by the father of Avery Lynn Canahuati — http://www.averycan.blogspot.com/.
I, like tens-of-thousands of folks, entered the term ‘spinal muscular atrophy’ into Google to learn about the prognosis. ‘Spinal Muscular Atrophy’ was one of the top search terms in Google a few weeks ago.
Avery died last week, fairly unexpectedly at the age of six-months.
If we all have a purpose in life, it’s clear Avery’s was to raise awareness of SMA and inspire us to appreciate our own lives and the health of our children.
God bless Avery and her family. My family grieves with them.